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Hear My RA Interview on KISS FM! Plus Updates & Coupons
Over the last two weeks, I haven’t been able to write very much because of 2 roadblocks: Do you have RA in your shoulder? Lately, I’ve just cried and lay with heat or ice on mine. Some days, I couldn’t...
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The Now-I-Understand Abbott Suit for Rheumatoid Arthritis
What’s the one thing I’ve said more than anything else over the last five years? “No one understands.” I sigh it quietly. I mutter it under my breath. I exclaim it loudly in frustration. I struggle to...
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ACR REF Rheum Research & Courage That Won’t Back Down
“Hey baby, there ain’t no easy way out… I won’t back down.” We just got back from Miami from the ACR Research Education Foundation (REF) RA Investigators’ Meeting where important research topics were...
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Behind the Scenes Video: Patient at a Social Media Conference
Telling it like it is. On camera. It’s uncomfortable. It’s very hard to talk about harsh pain. Why does pain seem so embarrassing? I even gave birth in quiet agony a few times because of that. 3...
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Video Blog: Two Essentials with a Rheumatoid Arthritis Diagnosis
What do you say to someone diagnosed with Rheumatoid Arthritis? If I could meet to every person diagnosed with Rheumatoid Arthritis, I’d encourage them to Expect the best from treatments; Read all of...
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When Rheumatology Is Sexy
If medicine can be sexy the way a new car or an iPhone is, what about rheumatology? Is there anything desirable or exciting there? Possibly, according to rheumatologist Ronan Kavanagh who wrote “The...
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Video: Rheumatoid Patient Foundation Gives RA Patients a Voice
This week, the Rheumatoid Patient Foundation (RPF) conducts our first exhibit at the American College of Rheumatology (ACR) Annual Scientific Meeting. Beginning tomorrow, we’ll present our video The...
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Mayo Clinic Video Interview: Patients at ACR Scientific Meeting
Some of you may be puzzled about what I’m doing in Chicago. So here’s a brief summary and a video interview with Mayo Clinic News Blog telling why patients are interested in a scientific meeting like...
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You’re Cordially Invited to Make SWEET MEMORIES with Other Warriors &...
Our friends at Arthritis Introspective (AI) do so much practical work to help people living with diseases like RA (and adult JRA) to connect for in-person support. Many of the groups listed on our own...
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7 Atypical Rheumatoid Arthritis Effects Are Actually Typical
Our similarities & differences with Rheumatoid Arthritis are fascinating! I sure wished I had a dollar for every time a patient told me his / her doctor said he / she was atypical! And some...
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Johnson & Johnson RA Warrior YouTube Video
Inside story of a new YouTube video about RA Warrior A few weeks ago, a Johnson & Johnson video team visited our house. See my sons spoofing with the big video camera? The things that captivate...
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Invisible Illness Awareness Video
Positively Real: Keeping the Discussion Real without Sugar Coating Everyone with an “invisible illness” owes such a debt to Lisa Copen, founder of Invisible Illness Awareness Week. She has done so much...
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